The parents and professionals I spoke to last night had a lot of things on their mind. Some of the most hotly discussed topics were around: validating the lived experience of PDAers and their families; persuading schools and extended family members to understand and accept PDA and; where to find support that doesn’t have years-long waiting lists.
I am passionate about improving the lives of PDAers and their families. I love to spread the word about what it is like and how people can help. This is why I am part of Team PDA. Even though PDA Action Week is drawing to a close, the work to spread the word goes on. Please can I ask two very small things of you?
Firstly, please let me know what is on your mind. What are the burning issues about PDA that you would love to see a post about? What single change would make the most positive difference for your family?
Secondly, if you have the spare capacity, please consider doing something for PDA in your community. This could be as simple as sharing information about PDA with your friends. Perhaps you could join Team PDA and volunteer for the PDA Society? Perhaps you have contacts with decision-makers and could give them the information they so desperately need to hear? Perhaps you can arrange a coffee morning or an informal talk? Whatever it is that you can manage, every little bit is always very much appreciated. You really can change the world!
Photo by Thomas Chan on Unsplash